The first issue took place from 5 to 7 August 2020 at the St. Petersburg City Dermatovenerologic Dispensary. Patients suffering from congenital epidermolysis bullosa were given expensive dressings.
People with epidermolysis bullosa are called “butterflies” because of the fragility of their skin. They have it so thin that it is damaged by the slightest touch. The wounds begin to bleed and hurt excruciatingly. In addition, blisters and erosion can appear on the skin and mucous membranes due to friction and even the ingestion of solid food.
Wounds heal with great difficulty.
It is impossible to cure “butterflies”, it is a genetic disease that manifests itself from the first months of a child’s life. But it is possible to significantly improve the quality of life of a person with epidermolysis bullosa. And it depends on the dressings. The more tender and better they are, the more protected the skin will become, and the faster erosions and ulcers will heal.
Earlier, “butterflies” bought dressings on their own or used the help of charitable foundations. However, according to Komzdrav Smolny, changes have been made to the Social Code of St. Petersburg. Now “butterflies” will be able to receive support from the city in the form of medical products purchased from budget funds. In 2020, 32 859.81 thousand rubles were allocated for the purchase of medical products.
In St. Petersburg, under the supervision of the dermatovenerological service, there are 31 patients with congenital epidermolysis bullosa.
– Among them there are 21 children and 10 adults. 1-2 new patients in need are identified annually, including through migration, – specifies press service of the St. Petersburg Healthcare Committee.